tag:blogger.com,1999:blog-7887600368686295628.post1070274652240898554..comments2023-06-16T10:09:02.527-05:00Comments on CIDP And Me: Vitamins and CIDPKristen Reynahttp://www.blogger.com/profile/00948078317775713804noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7887600368686295628.post-48100470247515671062008-09-26T19:00:00.000-05:002008-09-26T19:00:00.000-05:00I'm sorry, it's actuallywww.gbs-cidp.org not.com. ...I'm sorry, it's actually<BR/>www.gbs-cidp.org not.com. Sorry!Kristen Reynahttps://www.blogger.com/profile/00948078317775713804noreply@blogger.comtag:blogger.com,1999:blog-7887600368686295628.post-80890488582337058882008-09-26T08:36:00.000-05:002008-09-26T08:36:00.000-05:00Dear Anonymous,I've never heard that about B12, bu...Dear Anonymous,<BR/>I've never heard that about B12, but I haven't taken it in years. I tried it briefly but felt no changes. I don't take any vitamins right now, but I'm sure a multivitamin would be good for me. As far as diet, I've never been told one way or the other, only to avoid excess of anything. My only exercise is walking at this point because anything else is just too much and I need to be able to get through my day. I took prednisone very early in my diagnosis and there are many who continue that treatment. If you have time, check out this website for TONS of great information.<BR/>www.gbs-cidp.com <BR/>I'm glad you stopped by and I'd love to hear more about how your father is doing. Keep me posted!<BR/>With hope,<BR/>KristenKristen Reynahttps://www.blogger.com/profile/00948078317775713804noreply@blogger.comtag:blogger.com,1999:blog-7887600368686295628.post-17159161630966925442008-09-24T21:25:00.000-05:002008-09-24T21:25:00.000-05:00My father was diagnosed with CIDP over 8 years ago...My father was diagnosed with CIDP over 8 years ago, but was told to take only multivitamins, never vitamins by themselves...specially B12, as by itself it could damage his nerves further.<BR/><BR/>He does take Omega 9, a B Complex, which he has suspended and will replace with a multivitamin complex and Vitamin C.<BR/><BR/>Have you guys had any suggestions regarding your diet and exercise?? Also, have you tried prednisone??Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7887600368686295628.post-7814735898734861982008-08-28T11:33:00.000-05:002008-08-28T11:33:00.000-05:00Me again.What I think (as an enginner who works on...Me again.<BR/>What I think (as an enginner who works on proofs, not in theoretical o phylosofical thinking..) that is that if vitamins never worked to improve my inmune system when for years I had one hundred colds and flue, in bed for weeks, why it would work now? Should do not do anything to it to take vitamins, omega 3, lecithin and calcium.<BR/>And for sure it will improve my axons damaged by the anti-GD1a autoantibody I have at high rates.<BR/>I think is the same it happens with the old theory od bed and keep quit for spinal or arthritis, that now is the other way; no bed, exercice, lot of physio.<BR/>Sorry for my english, spanish my mother language.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7887600368686295628.post-27516855489966010512008-08-28T11:24:00.000-05:002008-08-28T11:24:00.000-05:00I agree 100% with you.I have been told vitamins ar...I agree 100% with you.<BR/>I have been told vitamins are not necesary if I eat well. But with cido there are thinks I can not eat, as I have paresthesias in my rib and gas I can not feel is going by.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7887600368686295628.post-78220987061735987302008-03-13T17:04:00.000-05:002008-03-13T17:04:00.000-05:00I've had CIDP for almost as many years and I don't...I've had CIDP for almost as many years and I don't recall any prohibition regarding vitamins. I take a multi-vitamin, B complex, extra vitamin C and Omega fish oil for my heart. Never had any comments from my neurologist about this (he specializes in Neuropathy). If anything, all I've read is that vitamin B12 should be increased if your body isn't assimilating it properly.Unknownhttps://www.blogger.com/profile/02585389911120521335noreply@blogger.com