As with any illness, becoming educated about CIDP has given me power. Power to stand my ground when I disagree with a doctor. Power to fight with the insurance company. Power to demand quality health care from home health agencies. Power.
There are times though, even with the information I have about CIDP, when I don't have the knowledge and information I need. I need answers. No answers, no power. There are times when I have to realize no one knows the answer. CIDP is so rare, answers are sometimes scarce. I just have a hard time accepting that answer.
Today I'm struggling with a lack of knowledge. I have a medical question and I've heard contrary answers from seemingly qualified health professionals. My question is "Is it safe for CIDP patients to take daily multivitamins?" I understand there's a fine line for CIDP patients and vitamins. A fine line between helping and harming. On the other hand, how do I know where that line is? How can I be certain a multivitamin is strengthening the "right" part of my immune system and not the part that has gone haywire? Anyone have the answer?
For the past two weeks, I've been taking a multivitamin and a calcium supplement. I plan to continue taking both until I'm told otherwise and I'd love to hear what you think. Until then, a wonderful resource of knowledge I've found is www.gbs-cidp.org