I received an email today asking me if I was okay and if I thought I was getting worse. I soooooo appreciate the concern, but I am NOT doing any worse than I have in the past. This is certainly an up and down disease. I'm just being honest with all of you and with myself. Denial is not healthy. I'm unable to help others until I've helped myself. I NEED to be able to write down the truth about CIDP and then let it go...the same way I always have. The only difference now is that I have the desire to share my life with this disease in order to help someone else. Who knows if there's someone out there reading this suffering silently? You just never know and I don't want anyone to feel alone in their suffering.
I don't want to worry anyone or cause any undue alarm by the things I write here. If things are worse than they've ever been, I'll share that with you. Trust me, I NEED you guys. I'm just trying to be honest. Again, I can't tell you how much your love and concern means to me. Have a good night!